Tuesday, December 16, 2008

Fly Guy





So, I know it's time for Blake to be discharged when all of his nurses are telling him and his mother that he is "fly" and has "gorgeous eyes". Thankfully, the doctors agreed- with the discharge plan that is. He got another central line, although this one is through his arm, and will follow-up daily at the clinic. Turns out, his numbers are slightly up today, and should be recovered enough to go home on Friday perhaps! He was very happy to be at home last night and eating food not produced for NASA or in China. We had tacos, and Alden loves them too to the extent that he turned into a taco colored baby.

His white count was bottomed out for 4 days, socking it to the immune system. We want to have killed as many of his aberrant cells as possible so that it will behave from now on. Today, it's up to 100 with an ANC of 10. It rises exponentially, so on Friday it may be ready for us to leave. Apparently, they came down on Blake because I was not present at the clinic, but I had to stay with Alden and Blake is running laps around the building without difficulty. He even helped to bring in groceries! Once they realized just how well he is doing, they calmed down.

He is shedding hair like crazy, so he shaved it off at the clinic and got a comfy cotton chemo-hat. His chesthair, stubs on his head, and eyebrows have bald spots and I'm washing the sheets quite often. I can't imagine him without eyebrows, although, since he is so fly he'll rock it without a problem.

We had another bit of good news yesterday. I had been having blurry vision in one eye for a few weeks, though without other symptoms. This of course freaked us both out thinking that it might be optic neuritis and I was terrified to haul myself to the opthamologist's. But, they have an Eye ER (who has that??) and the lovely resident dilated my eyes to the point they are STILL dilated 2 days later, and informed me that I have dry eye and that my makeup is "shiny". (A particle was on my eye), but that my optic nerves are just fine. Whew!

Below is a poem Blake spontaneously came up with:

Waiting In Baltimore
Oh what a bore it would be
if it weren't for our Friends and our dear Family
When it's as cold as the doctors are bold
I just can't take any more
I've got to get home to 6th Avenue
for some time with our Friends and a Christmas brew
And as the days pass
and the holidays lapse
what a Gift we will find it to be
That Time in Baltimore

-Fly Guy
Wow, look at that white guy- just imagine his eyebrows are gone!

8 comments:

Tracey said...

Dude, you look tough!

Doug said...

Wow! We're neighbors with Mr & Mrs Fly Guy poet! Who knew!?! :D Mary- don't read this: Blake- operation "baby diaper box illumination" has been successfully completed! Keep your warm clothes handy for the return trip, it is unusually cold here. It snowed Saturday night, is supposed to snow tonight, and maybe again Saturday or Sunday. We'll have some winter brews ready for your return, and can't wait to see all 3 of you.

Unknown said...

Hi guys

Blake you seem to handle the whole trip so good!!! you are so strong, cant wait to see you back home as fit and healthy like you were when we met you first.
Mary: ( It may be that you have read this before, I don't seam to be able to get a message posted, but I wont you to know this) you are the best. You rely do everything and much more to keep Blake as safe and comfy as possible.
And Alden, make sure, you keep Mom and Dad in a good spirit with being just who you are.
We think off all of you
Love,
Chet, Luzia and Thailan

Nana Katherine said...

Dear Blake and Mary- I thought all would be OK after you were released at 4:30 pm Monday afternoon when I said goodbye to you in Baltimore. I received your last message late last night that the evil infection was back and you were back in the hospital! NOOOOOOO! You looked so well, giving truth to the saying that looks may be deceiving.Dear God in Heaven. How is Mary juggling Alden and visits to JH without someone there now? As miraculous as your treatment is, as wonderful as you have rebounded, I am saddened at your predicament as Christmas swiftly approaches.

svAndiamo said...

Hey guys! Christmas is whenever you get here. It will wait for you to get better.

Keep kickin' MS ass!!!!

Sarah

chipp said...

Christmas will definitely be waiting for you when you return! Get better, be safe, and we'll see you soon!

Good thoughts,

Jeff

Cheryl said...

Work that bald head - WORK IT, OWN IT!
Sorry the food there sucks. Any requests for yummy treats from Maui? Maui Rum? Macadamia nuts?
Miss you three!!

Nic George said...

That is a serious gangsta pose. As the New Kids on the Block Say, just Hang Tough.

We miss you guys!

Em & Nic